Innogen · Publications · Working papers
Regulation Of Human Genomics & Genetic Biotechnology: Risks, Values And Analytical Criteria
Scientific fields such as that in human genomics are evolving at a much greater rate than legislation. In a democratic society it is both desirable and inevitable that existing and emerging legislation be assessed/evaluated and discussed. But by what means is this accomplished? This article elucidates a host of ethically-grounded rules/imperatives derived from five core, internationally-held human values, namely human dignity, sanctity of life, autonomy, justice and solidarity. It is expected that these rules/imperatives can offer a common language and framework by which to discuss and assess legal instruments, and thereby answer the questions identified in the Mission Statement to Innogen's Project 5.
Download .pdf (367 kb) - Regulation of Human Genomics and Genetic Biotechnology (wp40)