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The collection, linking and use of data in biomedical research and health care: ethical issues

Montgomery, J   Laurie, G   et al (eds)

February 2015

Nuffield Council on Bioethics, 210 p.

nuffieldbioethics.org

We are generating more data about people’s health and biology than ever before. Combined with advances in IT and data science, this offers significant opportunities to generate new knowledge and improve medical practice; but it also raises concerns about individuals’ privacy.

This report looks at the ethical issues raised by data use in biomedical research and health care. It sets out key ethical principles for the design and governance of data initiatives, and identifies examples of good practice relevant to anyone approaching a data initiative (see further details on http://nuffieldbioethics.org/project/biological-health-data/).