Innogen  ·  Publications  ·  Reports
A Review of Evidence Relating to Harm Resulting from Uses of Health and Biomedical Data

Laurie, G   Stevens, L   Jones, KH   Dobbs, C

June 2014

Nuffield Council on Bioethics

nuffieldbioethics.org

The use of new technologies that greatly facilitate the collection, storing and linking of data has become increasingly important to biomedical research and healthcare, as well as to many of the conveniences of contemporary life. However, new uses of health and biological data relating to distinguishable individuals also holds potentially far-reaching implications for privacy, interpersonal relationships and the relations between individuals and society.

A consultation on ethical issues raised by the linking and use of biological and health data ran between 17 October 2013 and 10 January 2014 (see http://nuffieldbioethics.org/project/biological-health-data/evidence-gathering/).

This report was prepared for the Nuffield Council on Bioethics Working Party on Biological and Health Data and the Expert Advisory Group on Data Access.