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On Moving Targets and Magic Bullets: Can the UK Lead the Way with Responsible Data Linkage for Health Research?

Laurie, G   Ainsworth, J   Cunningham, J   Dobbs, C   Jones, KH   et al

International journal of medical informatics   84 (11) 933–940

DOI: 10.1016/j.ijmedinf.2015.08.011

November 2015   (First published online August 2015)

http://www.sciencedirect.com/science/article/pii/S1386505615300356

The purpose of this article is to provide an overview of essential elements of good governance of data linkage for health-related research, to consider lessons learned so far and to examine key factors currently impeding the delivery of good governance in this area.

Given the considerable hurdles which must be overcome and the changing landscape of health research and data linkage, a principled, proportionate, risk-based approach to governance is advocated.