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Genetic Privacy
A Challenge to Medico-Legal Norms

Laurie, G

Cambridge University Press   May 1 2002

www.cambridge.org

ISBN 9780521047128 (paperback)

ISBN 9780521660273 (hardback)

The phenomenon of the New Genetics raises complex social problems, particularly those of privacy. This book offers ethical and legal perspectives on the questions of a right to know and not to know genetic information from the standpoint of individuals, their relatives, employers, insurers and the state. Graeme Laurie provides a unique definition of privacy, including a concept of property rights in the person, and argues for stronger legal protection of privacy in the shadow of developments in human genetics. He challenges the role and the limits of established principles in medical law and ethics, including respect for patient autonomy and confidentiality.

This book will interest lawyers, philosophers and doctors concerned both with genetic information and issues of privacy; it will also interest genetic counsellors, researchers, and policy makers worldwide for its practical stance on dilemmas in modern genetic medicine.

  • Provides a unique definition of privacy for dealing with problems thrown up by genetics
  • Offers a challenge to existing models for dealing with genetic information
  • Suggests a concept of property rights in the person